The significance of family caregivers today

Jana Konečná, Zdeňka Mikšová
Palacký University in Olomouc, Faculty of Health Sciences, Department of Nursing, Olomouc, Czech Republic

Korespondenční autor: Jana Konečná (jana.konecna@upol.cz)

ISSN 1804-7181 (On-line)

Full verze:
Full version

Submitted:16. 1. 2016
Accepted: 20. 4. 2016
Published online: 30. 6. 2016

Summary

Family care is defined as an informal type of lay care that is based on the principles of solidarity and love for the next of kin. The significance of this type of care is currently rising among the elderly in connection with the rising demographic increase in the number of older adults. Care for the elderly within families has a number of benefits, but there are also drawbacks that need to be eliminated. The major benefit for the elderly is being able to live at home in a stress-free environment. The major drawbacks lie in the physical and psychological strain for the caregiver, the financial burden for the family, a disrupted cohabitation, and disrupted relationships between the care provider, the care recipient and the family. Consequently, state social and health policy should support family care not only financially with available services, but also with moral appreciation. The system is still recipient-oriented rather than focusing on the family caregiver. Support for family caregivers has a positive effect, namely in long-term care on the overall health of the older person, as well as on the national economy. The information obtained was gathered from electronic databases: EBSCO, PubMed, BMČ, Google Scholar, etc. The inclusion criteria for the theoretical overview was a search period of 2005–2015 and availability of full texts. The keywords used were: family caregiver; role of caregiver; elderly; strain; burden. The exclusionary criteria were abstracts, articles related to childhood, etc. The aim of the article is to describe the current situation of family care and family caregivers in the Czech Republic. Summarized information can be useful for health and social services, and in particular for the necessary support and assistance to family caregivers.

Keywords: family caregiver; role of caregiver; elderly; strain; burden

Literatura

1. Bártlová S (2006). Postavení laických pečovatelů v péči o seniory a nemocné [The status of nonprofessional carers in senior and patient nursing]. Kontakt. 8/2: 235–239 (Czech).

2. Formánková P, Novotný A, Efenberková M (2012). Problematika realizace rodinné péče o osobu se sníženou soběstačností [The issue of the family care provision for a person with lower self-sufficiency]. Kontakt. 14/2: 159–170 (Czech).

3. Jedlinská M, Hlúbík P, Levová J (2009). Psychická zátěž laických rodinných pečovatelů [Psychological pressure in non-professional family carers]. Profese-online, no. 1. [online] [cit. 2015–09–08]. Available from: http://profeseonline.upol.cz/…edlinska.pdf (Czech).

4. Jeřábek H (2009). Rodinná péče o seniory jako „práce z lásky“: nové argumenty [Family senior nursing as a “labour of love”: new arguments]. Sociologický časopis, no. 2. [online] [cit. 2015–08–08]. Available from: http://sreview.soc.cas.cz/…ek2009-2.pdf (Czech).

5. Jeřábek H, Bartoňová J, Barvíková J, Osuský M, Remr J, Rubášová M, Tomandlová V (2005). Rodinná péče o staré lidi [Family senior nursing]. Praha: CESES FSV UK, 99 p. [online] [cit. 2015–08–18]. Available from: http://www.ceses.cuni.cz/…_jerabek.pdf (Czech).

6. Klímová Chaloupková J (2013). Neformální péče v rodině: sociodemografické charakteristiky pečujících osob [Informal family care: socio-demographic characteristics of carers]. Sociologický ústav AV ČR, no. 2. [online] [cit. 2015–10–08]. Available from: http://dav.soc.cas.cz/ uploads/49c1b4b53a­e349e160c7443ef7831dbfa6­c1b72e_DaV_2013–2_107–123–1.pdf (Czech).

7. Kotrusová M, Dobiášová K (2012). Česká republika na rozcestí mezi domácí a institucionální péčí o seniory [The Czech Republic at a crossroads of home care and institutional senior care]. Fórum sociální politiky, no. 6. [online] [cit. 2015–10–18]. Available from: http://praha.vupsv.cz/…_2012-06.pdf (Czech).

8. Kotrusová M, Dobiášová K, Hošťálková J (2013). Role rodinných pečovatelů v systému sociální a zdravotní péče v ČR [The role of family carers in the social and health care system in the Czech Republic]. Fórum sociální politiky, no. 6. [online] [cit. 2015–08–08]. Available from: http://praha.vupsv.cz/…_2013-06.pdf (Czech).

9. Ministerstvo práce a sociálních věcí ČR (MPSV ČR) (2014). Národní akční plán podporující pozitivní stárnutí pro období let 2013 až 2017 [The national plan supporting positive aging for the period between 2013 and 2017]. [online] [cit. 2015–08–13]. Available from: http://www.mpsv.cz/…P_311214.pdf (Czech).

10. Oliveira AR, Rodrigues RC, de Sousa VE, Costa AG, Lopes MV, de Araujo TL (2013). Clinical indicators of “caregiver role strain” in caregivers of stroke patients. Contemporary Nurse. 44/2: 215–224.

11. Oosterveer DM, Mishre RR, Oort A, Bodde K, Aerden LA (2014). Anxiety and low life satisfaction associate with high caregiver strain early after stroke. Journal Rehabilitation Medicine. 46/2: 139–143.

12. Opara JA, Jaracz K (2010). Quality of life of post-stroke patients and their caregivers. Journal of Medicine and Life. 3/3: 216–220.

13. Pacáková H, Trusinová R (2012). Citová solidarita při péči o seniory [Emotional support in senior nursing]. Kontakt. 14/4: 464–474 (Czech).

14. Pierce LP, Thompson TP, Govoni AL, Steiner V (2012). Caregivers’ Incongruence: Emotional Strain in Caring for Persons with Stroke. Rehabilitation Nuring. 37/5: 258–266.

15. Schulz R, Beach SR, Cook TB, Martire LM, Tomlinson JM, Monin JK (2012). Predictors and Consequences of Perceived Lack of Choice in Becoming an Informal Caregiver. Aging Mental Health. 16/6: 712–721.

16. Sladká I, Machová A (2008). Spolupráce rodinných příslušníků se zdravotnickým personálem v péči o seniory v domovech seniorů [The co-operation of family members with nursing staff in homes for the elderly]. Kontakt – supplement. 10/1: 50–54 (Czech).

17. Svobodová K (2006). Demografické stárnutí a životní podmínky seniorů v České republice. XI. demografická konference české demografické společnosti [The demographic aging and life conditions of seniors in the Czech Republic. The 9th demographical conference of the Czech demographic society], p. 185–193. [online] [cit. 2015–09–10]. Available from: http://praha.vupsv.cz/…/Do_1574.pdf (Czech).

18. Tabaková M, Václaviková P (2008). Záťaž opatrovateľa v domácom prostredí [A carer’s pressure in the home environment]. Profese-online, no. 2. [online] [cit. 2015–08–20] Available from: http:// profeseonline­.upol.cz/archi­ve/2008/2/POL_CZ_2008–2–3_Tabakova.pdf (Slovak).

19. Tóthová V, Veisová V, Bártlová S (2011). Názory lékařů a všeobecných sester na výhody a nevýhody péče o seniory v domácím prostředí [Doctors’ and nurses’ opinions on the advantages and disadvantages of seniors in a home environment]. Kontakt. 13/2: 130–136 (Czech).

20. Triantafillou J, Naiditch M, Repkova K, Stiehr K, Carretero S, Emilsson T et al. (2010). Informal care in the long-term care system. European Overview Paper. Project interlinks, p. 67. [online] [cit. 2015– 08–18]. Available from: http://www.euro.centre.org/…16_84909.pdf