Radka Šerfelová, Katarína Žiaková, Ľubomíra Ježová
Institute of Nursing, Jessenius Faculty of Medicine, Martin, Comenius University, Bratislava, Slovakia

Korespondenční autor: Radka Šerfelová (

ISSN 1804-7181 (On-line)

Full verze:
Full version

Submitted:12. 12. 2011
Accepted: 1. 6. 2012
Published online: 28. 6. 2012


Aim: A study of the relationship between the burden of family caregivers, the overall life quality of caregivers and caregivers’ satisfaction in providing care to dying patients.

Methods: This quantitative prospective study used three standardised questionnaires as the means of data collection: Caregiver Strain Index – the assessment of the burden of a caregiver, Caregiver Quality of Life Index Cancer – identification areas of the life quality of a caregiver and FAMCARE – the assessment of the satisfaction with providing care. The research sample consisted of 263 caregivers providing care to dying patients.

Results: The results of the correlation analysis showed a linear relationship between the burden, the satisfaction and overall life quality of caregivers (p<0.05) as well as significant differences among the monitored components in terms of forms of providing care. The caregivers whose relatives have been provided palliative/hospice care indicate the lowest strain, the highest satisfaction with the care and the best overall quality of life. Discussion: The results of our study accept the conclusion of several studies and systematic reviews. The results confirmed that the caregivers themselves, providing the care for the dying, require care and support of their life quality from the nurses.

Conclusion: Clinical practice should focus on ways of empowering families and public education, as well as intensifying home care, risk assessment, and training practitioners in end of life care.

Keywords: caregiver; end of life care, burden; quality of life; satisfaction; nursing


  1. Brener TH (2007). End of Life A nurse’s guide to compassionate care. 1st ed. Noristown: Ambler. 312 p.
  2. Bruera E, Sweeney C, Willey J (2003). Perception of discomfort by relatives and nurses in unresponsive

terminally ill patients with cancer: a prospective study. Journal of Pain Symptom Management. 26/5: 818–826.

3. Bužgová R, Sikorová L (2010). Vliv specializované paliativní péče na hodnocení potřeb a kvalitu života pacientů [The influence of specialised palliative care on evaluation of patients’ needs and quality of life]. Ošetřovatelství a porodní asistence. 1/2: 43–47 (Czech).

4. Cameron JI, Franche RL, Cheung AM, Stewart DE (2002). Lifestyle interference and emotional distress in family caregivers of advanced cancer patients. Cancer. 94/3: 521–527.

5. Cannaerts N (2004). Palliative care, care for life: a study of the specificity of residential palliative care. Qualitative Health Research. 14/6: 816–835.

6. Chrastina J, Ivanová K, Marečková J (2009). Životní styl s chronickou nemocí – teoretická východiska [Lifestyle in the chronically ill – theoretical forces]. In: Čáp J, Žiaková K, editors. 8th International Conference on Theory, Research and Education in Nursing; May 22–23, 2009; Martin, Slovakia: Univerzita Komenského v Bratislave, Jesseniova lekárska fakulta. p. 193–207 (Czech).

7. Cohen MZ (2006). Quality Life of Family Caregivers of Patients with Cancer: A Literature Review. Oncology Nursing Forum. 33/3: 625–632.

8. Cohen R, Leis AM, Kuhl D, Charbonneau C, Ritvo P, Ashbury FD (2006). QOLLTI-F: Measuring family carer quality of life. Palliative Medicine. 20/8: 755–767.

9. Ferrell BR, Whitlatch BJ (2007). Home care. In Berger AM, Schuster JL, Roen JH (eds.): Principles and Practice of Palliative Care and Supportive Oncology. 3rd ed. Philadelphia: Lippincott Williams & Wilkins Publishers. p. 615–622.

10. Finlay IG, Higginson IJ, Goodwin DM, Cook AM, Edwards AGK, Hood Douglas KH-R, Normand CE (2001). Palliative care in hospital, hospice, at home: results from a systematic review. International Annals of Oncology. 13/4: 257–264.

11. Gaugler JE, Given WC, Linder J (2008). Work, gender, and stress in family care giving. Supportive Care in Cancer. 16/4: 347–357.

12. Glozman JM (2004). Quality of life of caregivers. Neuropsychology Review. 14/4: 183–196.

13. Goetschius SK, LaPorte Matzo M (2006). Caring for Families: The other patients in palliative care. In LaPorte Matzo M, Sherman DW (eds.): Palliative Care Nursing Quality Care to the End of Life. 2nd ed. New York. p. 247–272.

14. Gourdji IA (2009). Quality End of Life from a Palliative Care Patient’s Per­spective. Journal of Palliative Care. 25/1: 40–50.

15. Gurková E (2009). Vybrané ošetrovateľské diagnózy v klinickej praxi [Nursing diagnosis in clinical practice]. Martin: Osveta, 244 p. ISBN 978–80–8063–308–0 (Slovak).

16. Hanson E. (2007). Obecné potřeby rodin pečujících o terminálně nemocné lidi [The needs of family caregivers in providing care to terminally ill patients]. In Payne S, Syemour J, Ingleton Ch (eds.): Principy a praxe paliativní péče. Brno: Společnost pro odbornou literaturu, p. 348–370 (Czech).

17. Harding R (2004). Evaluation of a short term group of intervention for informal carers of patients attending a home palliative care service. Journal of Pain and Symptom Management. 27/2: 396–408.

18. Hudson, P (2004). Positive aspects and challenges associated with caring for a dying relative at home. International Journal of Palliative Care. 10/3: 58–65.

19. Hudson P, Quinn K, Krisjanson L, Thomas T, Braithwaite M, Fisher J, Cockayne M (2008). Evaluation of a psycho-educational group programme for family caregivers in home-based palliative care. Palliative Medicine. 22/3: 270–280.

20. Kim Y, Given BA (2008). Quality of life of family caregivers of cancer survivors: across the trajectory of the illness. Cancer. 112/11: 2556–2568.

21. Kristjanson L (1993). Validity and reliability testing of the FAMCARE scale: measuring family satisfaction with advanced cancer care. Social Science and Medicine. 36/5: 693–701.

22. Lee H, Cameron M (2004). Respite care for people with dementia and their carers. Cochrane Database of Systematic Reviews. 1/1: 1–21.

23. Lingler JH, Sherwood PR, Crighton MH (2008). Conceptual challenges in the study of caregiver-care recipient relationships. Nursing Research. 57/9–10: 367–372.

24. Mellon S (2002). Comparisons between cancer survivors and family members on the meaning of the illness and family quality of life. Oncology Nursing Forum. 29/8: 1117–1125.

25. Meyers JM, Gray LN (2001). The Relationships between Family Primary Caregiver Characteristics and Satisfaction with Hospice Care, Quality of Life and Burden. Oncology Nursing Forum. 281/: 73– 82.

26. Northouse LL, Mood DW, Montie JE (2007). Living with prostate cancer: Patients’ and spouses’ psychosocial status and quality of life. Journal of Clinical Oncology. 25/27: 4171–4177.

27. Peters L (2006). Quality of Life of cancer patients receiving inpatient and home-based palliative care. Journal of Advanced Nursing. 10/12: 524–533.

28. Pinquart M, Sörensen S (2005). Ethnic differences in stressors, resources, and psychological outcomes of family caregiving: a meta-analysis. The Gerontologist. 45/1: 90–106.

29. Robinson BC (1983). Validation of a Caregiver Strain Index. Journal of Gerontologist. 38/3: 344–348.

30. Salmon JR, Kwak J, Acquaviva KD (2005). Transformative aspects of caregiving at life’s end. Journal of Pain and Symptom Management. 29/3: 121–129.

31. Schumacher KI, Koresawa S, West C (2002). Putting cancer pain management regimens into practice at home. Journal of Pain Symptom Management. 23/6: 369–382.

32. Stajduhar KI (2003). Examining the perspectives of family members involved in the delivery of palliative care at home. Journal of Palliative Care. 19/4: 27–35.

33. Tabaková M (2011). Validizácia ošetrovateľskej diagnózy Preťaženie opatrovateľa [Validation of nursing diagnosis Caregiver Role Strain]. In Čáp J, Žiaková K (eds.): 9th International Conference on Theory, Research and Education in Nursing; May 26, 2011; Martin, Slovakia: Univerzita Komenského v Bratislave, Jesseniova lekárska fakulta, p. 375–385. (Slovak).

34. Tabaková M, Václaviková P (2008). Záťaž opatrovateľa v domácom prostredí [Burden in family caregiver]. In Profese on-line [online]. no. 2 [cit. 2009–05–12]. Available at: text/cs/zataz-opatrovatela-v-domacom-prostredi.aspx. (Slovak).

35. Tamayo GJ (2010). Caring for the Caregiver. Oncology Nursing Forum. 37/1: 50–57.

36. Weitzner MA, Jacobsen PB, Wagner H, Jr., Friedland J, Cox C (1999). The Caregiver Quality of Life Index-Cancer (CQOLC) scale: development and validation of an instrument to measure quality of life of the family caregiver of patients with cancer. Quality of Life Research. 8/1–2: 55–63.

37. Weitzner MA, McMillan SC (1999). The Caregiver Quality of Life Index-Cancer (CQOLC) Scale: revalidation in a home hospice setting. Journal of Palliative Care. 15/2: 13–20.

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